Community-Based Palliative Care (CBPC) Resource Center
Tools and tips for starting and sustaining programs
July 31, 2015
While specialist palliative care is available in many acute care hospitals, people with serious illness and their families can also benefit greatly from community-based palliative care (CBPC), an emerging field that is starting to take root in communities across California.
This resource center provides strategies and support for organizations that are planning, implementing, or enhancing an outpatient CBPC program. Resources include:
Key Concepts: Essential information about the need for and prevalence of CBPC
Best Practices: Guidelines to support program development, monitoring, and improvement
Because community-based palliative care is continuously evolving, it’s critical to have up-to-date information on CBPC services (and what it will take to improve their quality). These resources provide foundational information and guidance for existing and emerging palliative care programs.
Palliative care experts, specialty care associations, and quality leaders have developed clinical guidelines and endorsed practices to support the delivery of high-quality palliative care. These materials can help new and established programs develop and evaluate core service components.
A growing body of materials describes a range of models for delivering community-based palliative care (CBPC), highlighting how programs differ in composition of interdisciplinary teams, patients served, and types of services provided.
Snapshots of Palliative Care Practices
Summary of information shared by participants in the 2015 Coalition for Compassionate Care Annual Summit, including approaches to working with patients, working with providers, and measuring the impact of palliative care services. (California Health Care Foundation and Coalition for Compassionate Care of California)
AHRQ Health Care Innovations Exchange (Search for “end-of-life care”.)
Searchable database of evidence-based health care innovations and tools from across the country. (Agency for Healthcare Research and Quality)
Palliative Care in the Outpatient Setting
Report evaluating the evidence on the clinical effectiveness and value of palliative care services with an overview of the policy landscape surrounding palliative care, and a summary of the March 31, 2016, public meeting of the New England Comparative Effectiveness Public Advisory Council. (Institute for Clinical and Economic Review [ICER])
Assessing quality and measuring the impact of community-based palliative care (CBPC) services is essential for identifying and addressing gaps in care. The following resources provide information on metrics endorsed by national quality leaders and clinical experts. Tools that support selecting metrics for a comprehensive evaluation plan are available in the Tools section.
Quality Positioning System (Search for “palliative care”.)
Searchable database of endorsed or formerly endorsed measures. Includes items endorsed for palliative and end-of-life care delivered to any individual, as well as palliative care measures for specific diseases. (National Quality Forum)
Measuring What Matters
Consensus recommendations on performance measures for hospice and palliative care programs. (American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association)
Quality Oncology Practice Initiative
Information and tools for outpatient oncology practices to assess and improve care, including 26 measures addressing end-of-life care. (American Society of Clinical Oncology)
PEACE Hospice and Palliative Care Quality Measures
Information and practical clinical tools that support measuring quality of care and using data to inform quality improvement initiatives. The quality measures address domains included in the National Consensus Project for Quality Palliative Care and those endorsed by the National Quality Forum. (Carolinas Center for Medical Excellence and University of North Carolina-Chapel Hill)
Dartmouth Atlas of Healthcare
Information, searchable database, and customizable reporting tools on health care performance across the country, including subtopics on care of chronic illness in the last two years of life and end-of-life care. (The Dartmouth Institute for Health Policy and Clinical Practice)
These resources can help organizations assess the need for new or expanded CBPC services, and the quality and impact of existing services.
Palliative Care Measure Menu
This tool enables palliative care leaders, quality professionals, and administrators to quickly and efficiently select a feasible, balanced portfolio of quality measures that mirror the scope and focus of a given PC program. (California Health Care Foundation)
Supportive Care Calculators – Clinic and Home-Based Services
Tools to help clinical and administrative leaders make data-driven decisions about the costs and expected benefits of creating or expanding palliative care clinics or home-based services. (California Health Care Foundation and Coalition for Compassionate Care of California)
These resources, online or in-person, address the educational and training needs of palliative care specialists and generalists.
California State University Institute for Palliative Care
Instructor-led and self-paced online courses for the current and future palliative care workforce and for patients and families. The Building a Community-Based Palliative Care Program series of self-paced courses walks users through every step of the CBPC development process. In addition, the institute offers interprofessional courses as well as discipline-specific courses for nurses, social workers, and chaplains, with options for certificate courses for palliative care specialists and overview courses for generalists.
Palliative Care Leadership Centers
In-person and virtual intensive, operational training and year-long mentoring for palliative care programs at every stage of development and growth. Eight leadership centers are located across the United States.
Stanford Palliative Care Training Portal
Free online clinical training modules for doctors, nurses, psychologists, social workers, and other allied health personnel. Topics include palliative care overview, prognostication, communication, opioid conversion, dyspnea, home hospice, palliative sedation, transition to death, and bereavement.
Center to Advance Palliative Care
Online courses aim to build the primary and specialist palliative care skills of front-line clinicians. CEU/CME credits are offered for social work, nursing, and medicine. Courses address clinical and operational issues such as pain management, communication skills, palliative care across settings, building a program, and leadership support.
Fast Facts and Concepts
Searchable library of concise, practical, evidence-based summaries of key clinical palliative care topics. (Center to Advance Palliative Care and Medical College of Wisconsin)
Advanced communication skills courses and faculty training courses to support conversations about serious illness and end-of-life care.
Palliative Care Education and Practice
Intensive 15-day learning experiences for physician and nurse educators on the clinical practice, program development, and teaching of comprehensive, interdisciplinary palliative care. (Harvard Medical School)
Palliative Care Network of Wisconsin (PC NOW) (free registration required)
Resources include self-study resources in clinical care for generalists or specialists, educational resources to teach others, and tools and resources.
Interpreting in Palliative Care Workshop Curriculum
Free curriculum for trainers of medical interpreters to use in preparing experienced interpreters to work in palliative care settings. Includes materials in simplified Chinese, traditional Chinese, Korean, Russian, Spanish, Tagalog, and Vietnamese. (California Health Care Foundation and Health Care Interpreter Network)
Online platform developed by five UC campuses to support training of medical students, residents, and practicing physicians using case studies and tutorials; section on palliative and end-of-life care features content on pain management, improving communication with patients and family members, and ethical issues. (University of California, Davis)